ChaniBlog











So a little while ago I was telling someone about the wonders of bladder training, and went to look up instructions to link – and discovered it did not mean what I thought it meant. The exercises I’d been using (quite successfully, starting a month before my specialist appointment) weren’t on the internet at all, and now I’m not sure they ever were, so I figure I should write up what they are before I forget again. :)

This might be TMI if you’re not dealing with bladder issues yourself, so, you have been warned.

Actual bladder training, it turns out, is a combination of strengthening the muscles and holding it longer, until they’re strong enough you don’t need excessive bathroom breaks. I had similar symptoms but the opposite cause – my muscles were so strong and tight they weren’t letting my bladder hold anything without incredible pain, so I needed to relax and unknot them instead so that “holding it” wasn’t excruciating. (This might have been interstitial cystitis, but it’s one of those “this hurts, fuck knows why” diagnoses).

Disclaimer: Please, please check with your doctor before trying any of this! I don’t want anyone giving themselves a hernia – or god knows what else. This isn’t real medical advice, just a thing that’s been working for me so far that I want documented.

That said… I don’t remember what I did the first time, beyond some cryptic notes about “ab exercises”. But I do remember the maintenance version I do when it tries to act up again.

When my bladder is mostly empty, I breathe into my belly, and use that air to bear down on my abdomen until I feel just the edge of the bladder pain. Then I back off, and gently ease back into it, trying to relax everything around the bladder while pushing on it from above, and hold it on the edge of the pain as long as I can comfortably hold my breath. A few reps of that a few times a day, and the angry-pain starts to turn into healing-pain, and in under a week there’s a lot less pain. Then I can go longer between bathroom breaks, and I can do that exercise with my bladder only half-empty.

When that can’t reach the pain any more, I add in my ab muscles, which is harder to explain… I kinda just play around with them until I find a way to stretch or massage a sore spot. Pretty soon there isn’t much more to find, and then I forget about it until my bladder starts acting up again :)

Seeing as the only other method of bladder stretching I’ve seen online sounds kinda invasive, I wish I could tell pelvic floor specialists about this so they could turn it into a real treatment… although just now I found https://www.nafc.org/bhealth-blog/how-to-relax-your-pelvic-floor which… gets halfway to what I’m doing? but breathing alone wasn’t enough, and I didn’t need any of those stretches (although they are fun).



{April 13, 2021}   Oh right, I have a blog.

Wow, the wordpress editor has changed a lot. I’m… just gonna post this little test post to see what happens. And then maybe update my about page?

I haven’t touched this thing in years, but I’m still here. Haven’t really been up to blogging for most of that time; pain meds are not good for clear thinking. At least I did get working pain meds. Way back in… what, 2015? So much has happened since then, and yet so little. I still don’t fucking count as disabled to the Canadian government, even though I’m still not working. I *have* been well enough to cook 6-7 days a week through this pandemic, so that’s good. And I think I finally know *why* my body started trying to destroy itself – but hypermobility is something Canada just… doesn’t diagnose. The diagnostic criteria is flawed and soon to be changed anyways, so my doctor is happy to skip right to treatment – 90% of which it turns out I already did while figuring this shit out on my own. :P

(Side note: the UK seems to take a similar approach. The RCGP EDS toolkit – which might disappear from the internet soon – says this: “This section focuses on the hypermobile subtype (hEDS) and the related condition hypermobility spectrum disorder (HSD), where there are features of hEDS but the full criteria are not met. These conditions are not rare.  As GPs, we may work with a ‘suspected’ diagnosis for each of these conditions without referring for confirmation. The associated conditions, approach to management and the prognosis are felt to be the same for hEDS and HSD, so there is no clinical necessity to state with certainty which label is applicable.”)

Anyways, I might start blogging about some of that medical bullshit. We’ll see. Maybe I’ll throw in a sewing project too. For now I just wanna get *something* up here. :)



et cetera